UA House launches a new initiative to support kids suffering from a rare disease
FOR IMMEDIATE RELEASE
May 2, 2024, Sacramento, CA - UA House has recently launched a new initiative, aimed to support children suffering from Epidermolysis Bullosa (EB) by providing collagen patches that are necessary for bandaging and closing wounds to significantly ease the pain and improve the quality of life.
Epidermolysis bullosa is a genetic disease that affects a relatively small number of people worldwide, with only half a million cases reported.
In Ukraine, individuals with EB are recognized as people with disabilities and can only be treated at Okhmatdyt Children's Hospital in the "Specialized Medical Center for Children with Epidermolysis Bullosa." In these difficult times, especially in the midst of war, the Center requires our support and encouragement to help all its patients. Unfortunately, there is currently no cure for EB, but further treatment can help alleviate the pain and manage the condition. People with EB cover their wounds with dry plasters, pay attention to their diet, avoid injuries, and seek treatment for pain-related illnesses to manage their symptoms.
Your kind donations will assist us in providing collagen patches that are necessary for bandaging and closing wounds to significantly ease the pain and improve the quality of life for those suffering from EB.
EB affects not only the physical health of children but also their psychological well-being, making their everyday lives more challenging and preventing them from enjoying a normal and happy childhood. Epidermolysis bullosa is a rare disease, and only half a million people in the world have it, according to scientists.
“This initiative is a testament to our organization's commitment to making a positive impact in the community. We are dedicated to providing the necessary resources and support to these vulnerable children, and we remain hopeful that our efforts will make a significant difference in their lives,” said Caroleana Kvaterchuk Allison, Executive Director of Ukrainian American House.
With a project need of $50,000, your contributions will significantly aid us in acquiring collagen patches, which are crucial for bandaging and closing wounds to significantly ease the pain and improve the quality of life for those suffering from EB. We appreciate your support in this critical matter.
If you would like to support this vital cause, please visit our website to donate: https://www.uahouse.org/donate.
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