Epidermolysis Bullosa Relief: Healing Hope for Okhmatdyt Children's Hospital
Project need $50,000
Epidermolysis bullosa is a genetic disease that affects a relatively small number of people worldwide, with only half a million cases reported. In Ukraine, individuals with this condition are recognized as disabled, and they can only receive treatment at the "Specialized Medical Center for Children with Epidermolysis Bullosa" located in Okhmatdyt Children's Hospital. This hospital needs our support and encouragement to help all its patients, especially during these challenging times of war.
Your donation will be income to the “Ukrainian American House” that has registered 501(с) 3 non-profit organisation. No administration fee. 100% of fund goes to the project.
The "Specialized Medical Center for Children with Epidermolysis Bullosa'' has been providing assistance to children with Epidermolysis Bullosa (EB) and blisters for the past decade. This rare genetic disorder causes thin skin and mucous membranes, which are easily damaged, leading to a lot of suffering for young patients. Sores and blisters can appear on any part of their skin, even with minor friction or injury, causing pain and itching.
EB affects not only the physical health of children but also their psychological well-being, making their everyday lives more challenging and preventing them from enjoying a normal and happy childhood. Epidermolysis bullosa is a rare disease, and only half a million people in the world have it, according to scientists.
In Ukraine, individuals with EB are recognized as people with disabilities and can only be treated at Okhmatdyt Children's Hospital in the "Specialized Medical Center for Children with Epidermolysis Bullosa." In these difficult times, especially in the midst of war, the Center requires our support and encouragement to help all its patients. Unfortunately, there is currently no cure for EB, but further treatment can help alleviate the pain and manage the condition. People with EB cover their wounds with dry plasters, pay attention to their diet, avoid injuries, and seek treatment for pain-related illnesses to manage their symptoms.
Your kind donations will assist us in providing collagen patches that are necessary for bandaging and closing wounds to significantly ease the pain and improve the quality of life for those suffering from EB.
